Many of you have seen me at parties coughing or on oxygen and probably wondering what is wrong with me. I'm not contagious, no ebola. Here is a link to a recent article the newspaper did on me that can explain things. http://www.standard.net/Health/2014/10/20/cystic-fibrosis-girl-makes-it-to-29.html#
Oh is that all? We thought it was from huffing Right Guard All Day Protection spray deodorant with that tall guy who's always stalking you. He looks pretty sketchy to us. Prolly wouldn't be surprised if he also huffs Sherwin Williams Autumn Gold Spray Enamel. 
Keep fighting the good fight and swinging both in bed and on those trapeze thingys!
Keep fighting the good fight and swinging both in bed and on those trapeze thingys!
Actually we had a rather in depth conversation about this once at a party. Well, I did. You were just a tiny bit inebriated. 
Thank you for the article!
Our oldest grandchild has CF and at 17 is starting to run into more of the issues it causes.
We are glad to see even a little more attention being brought to such a horrific disease.
Flame and Toujours Flammes (AKA TJ)
Our oldest grandchild has CF and at 17 is starting to run into more of the issues it causes.
We are glad to see even a little more attention being brought to such a horrific disease.
Flame and Toujours Flammes (AKA TJ)
We read your post and watched the video news article. You're an inspiration to all of us. All of our hopes and best wishes go out to you.
Absolutely! Best wishes to the both of you! I spent some time working at a CF camp for children, so understand a bit of what you have most likely gone through. You know you are an inspiration to all that have cf! And the way you address it is an inspiration to all of us!
Sort of puts all the other petty drama in this place in a meaningless pile!
Sort of puts all the other petty drama in this place in a meaningless pile!
TIFFND wrote:
Absolutely! Best wishes to the both of you! I spent some time working at a CF camp for children, so understand a bit of what you have most likely gone through. You know you are an inspiration to all that have cf! And the way you address it is an inspiration to all of us!
Sort of puts all the other petty drama in this place in a meaningless pile!
I went to cf camp when I was little. I was 1992-1996 I think
Well you looked awesome at the party and I'm admire you for getting out and having fun anyway. My ass would probably sit home with my arms crossed. Seriously. Good for you 
FIDO, Fuck It Drive On!! Life is what you make of it and you appear to be making a great life.
Bob
Bob
Incredible story and you are such an inspiring person.
Haven't seen the video, but know all about CF. My cousin, Lynn, was born with it in the early '60s, they expected her to never make it past 5. Very little hope back then, but she's made it into her 50s, and I'd be surprised if you didn't have lots of years ahead of you. Sure hope so, you're a ray of sunshine in an all too dreary world.
FUCKCHASTITY wrote:Really?? Weren't too many of them...First were in Orem..and then at Camp Redcliff..and then out on Tooele, I believe...I was at Redcliff...TIFFND wrote:
Absolutely! Best wishes to the both of you! I spent some time working at a CF camp for children, so understand a bit of what you have most likely gone through. You know you are an inspiration to all that have cf! And the way you address it is an inspiration to all of us!
Sort of puts all the other petty drama in this place in a meaningless pile!
I went to cf camp when I was little. I was 1992-1996 I think
Chastity, you are an inspire us all with your constant suffering and make us all feel our issues are nothing compared to what you face. It is truly heart warming to watch the video and see your desire to live and not let this health problem get in your way of enjoying life.
I see no way in that someone should have any harsh words or criticism for you. If they do, then they are not worthy of being in the same room or a part of your life.
Please keep up the battle and staying ahead of what ails you. A TRUE HEROINE in my book.
I see no way in that someone should have any harsh words or criticism for you. If they do, then they are not worthy of being in the same room or a part of your life.
Please keep up the battle and staying ahead of what ails you. A TRUE HEROINE in my book.
Doctors don't know everything. Keep proving them wrong. You are an inspiration.
Wow, what a super-cool and beautiful woman! Thanks for sharing!
OMG! How inspiring!
Pretty cool to share a "community" like this with someone like you. Thanks for the video. Best wishes
Pretty cool to share a "community" like this with someone like you. Thanks for the video. Best wishes